Showing posts with label the littlest heros project. Show all posts
Showing posts with label the littlest heros project. Show all posts

Wednesday, December 30, 2009

This weeks Littlest Hero..."Noah"

Noah's Story:

"Just about 4 years ago in January, 2004, baby Noah born. At the age of 5 months, we learned that he was born with agenesis of the corpus callosum. He is missing the part of his brain that connects the left and right hemipshere together. He is also diagnosed with colpocephaly, cerebral palsy, and speech apraxia. While these are very scary diagnoses for our family to hear from doctors; they do not make who he is today or who he will be in years to come.

I am Noah - a fun, loving, sweet 3 year old boy getting ready for my 4th B-Day in January, 2010. My journey of doctors, MRIs, exams and therapies has been pretty intense, but with each visit my family and I have something more to be thankful for. I wore a helmet to reshape my head, hand splints for my thumbs, braces for my feet, and have endured endless needles for testing. I have also gone from visiting the doctors once every three months to once a year. I currently participate in speech, physical, and occupational therapy. Although I cannot talk to you using my words, I can communicate by using signs and I am becoming quite versed in sign language.

Our son brings joy each and every day in all that he does and tries. He is so innocent and happy and keeps our hopes high with all that he will do one day! We truly learn something new each day and are so very blessed to have Noah in our lives."

-Noah's mom and dad











I got to meet Noah yesterday and instantly fell in love. Such a sweet wonderful little boy..and the love and dedication invested into Noah's little life so far...is shining progress. I had no Idea what to expect when arrived.. but its apparent after talking with his sweet mom and meeting this adorable little boy that he has surpassed any expectations dr's and specialists had when he left the hospital as a newborn...Yay!!!!! Keep up the good work family!! Noah you're going to be great buddy!
Noah's inspiring story will be passed along to the Littlest hero's project to be shared with hundreds of other families for the use of hope and inspiration.










Tuesday, December 22, 2009

NV daily and something different



This morning was a little different as we met with a reporter from NV daily. A local newspaper looking to do an article on the two organizations I contribute to.. "the littlest heros project" an an organization of volunteers and (volunteer) photographers who give back to these brave and inspiring families by giving the gift of professional capture. We travel to homes, hospitals, chemo clinics to make sure these little heros (children and teens who have a life altering disability or illness) get the royal treatment...and we can capture and celebrate them (and there family and siblings) in there own elements.
On a tougher to swallow note.. NILMDTS (Now I Lay Me Down To Sleep) is also a charity photography service. Geared towards children who have passed or will pass in the near future. May times the photographer is contacted prior to delivery if they know their baby wont live but might have short time on earth...so they want every single moment captured. Many of the babies are stillborn and the photographer is called to get the best possible photographs of the child with or without the family so that they have some visual memory to hold onto. The photos are then taken and edited and processed to achieve the look of slumber..not of death. They are beautiful..and so so valuable to the families.
Anyway, although I have not had an NILMDTS client yet... I participate with both organizations and look forward to educating the public on these available services.
As far as the something different.. I got this night shot of Katy looking at water droplets under the street lamp. Nothing extraordinary..but out of my element a tad.